• Parkinson’s Foundation Helpline …………………….. 1-800-4PD-INFO

• Parkinson’s Foundation………………………………… https://www.parkinson.org/

• Michael J. Fox Foundation ………………………….… www.michaeljfox.org

• Davis Phinney Foundation……………………….… https://davisphinneyfoundation.org/

• American Parkinson’s Disease Assoc. Massachusetts: https://www.apdaparkinson.org/community/massachusetts/ APDA MA has three staff members and a large volunteer board. The Chapter raises funds for programs and services including community grants, Individual hardship support, and research. APDA also provides the APDA National Rehab Resource Center located in Boston

https://www.apdaparkinson.org/community/massachusetts/resources-support-ma/additional-resources/apda-national-resource-center-rehabilitation/ as well as the APDA Information and Referral Center at Boston University Medical Center (BUMC)

617-638-7737.

1) Hartford Healthcare - Chase Family Movement Disorders Centers: https://hartfordhealthcare.org/services/movement-center

- 45 minutes from Monterey: 1914 East Main Street, Suite 2, Torrington CT 06790-3101 -

Phone -860-870-6385

- Benjamin Dorfman, MD https://hartfordhealthcare.org/services/movement-center/locations/locations-detail?id=a1P5b00000U1Q2ZEAV (Multiple members see him.)

- Chase Centers are also located in Bridgeport, Vernon, Cheshire, Stamford, Mystic and Hartford. https://hartfordhealthcare.org/services/movement-center/locations

- Chase Centers also have 10 other movement disorder neurologists: https://hartfordhealthcare.org/services/movement-center/about-us/our-team

2) Albany Medical Center (AMC)- Neurology-Movement Disorders

-1 hour from Monterey: 43 New Scotland Ave., MC-70, Albany, NY 12208-3478

Phone:518-262-6611 https://www.albanymed.org/specialty/parkinsons-disease/#

Movement Disorder Neurologists at AMC:

• Eric Molho, MD Director (Some members see him.)

• Octavian Adam, MD (Some members see him but he may not be taking new patients)

• Jennifer Durphy, MD

• Era Hanspal, MD (Some members see her.)

• Jared King, DO (He appears also to be in their Glens Falls office.)

• Sara Radmard, MD

3) Worcester - UMass Memorial Medical Center

-1 hour & 45 minutes from Monterey - 55 Lake Avenue North, Worcester, MA 01655 Phone: (508) 856-2527

Website: https://www.ummhealth.org/services-treatments/neurology/movement-disorders-clinic

Movement Disorder Neurologists at UMass Movement Disorders Clinic:

• Elizabeth Cozart, MD

• Anindita Deb, MD

• Wissam Deeb, MD

• Ari Wilkenfeld, MD, PhD

4) Boston Area:

-Several highly-regarded Parkinson's specialists and centers in Boston that areconsistently recognized for their expertise:

Boston University Medical Center (BUMC) and Boston Medical Center (BMC). BMC is the teaching hospital affiliated with Boston University School of Medicine. Combined they are Boston University Medical Campus.

• Kara M. Smith, MD, MSCI, FAAN Division Chief, Parkinson’s Disease and Movement Disorders Center Boston University.

Website: https://www.bumc.bu.edu/parkinsonsdisease/

• Also Marie-Hélène Saint-Hilaire, MD, FRCP(C), FAAN, Director of APDA Center of Advanced Research; Katelyn Bird, MD, MS; Steve C. Han, MD, MBA; & Pratik Rohatgi, MD, DBS Surgeon. Their staff includes Raymond James (rcjames@bu.edu), and Cathi Thomas (neurocat@bu.edu) who have been helpful to our group.

Cathi A. Thomas MS, RN, CNRN coordinates the APDA Information and Referral Center at BUMC and may also be reached at 617-638-7737. Raymond updates our group from time to time on new innovations in PD understanding and treatment.

• List of physicians and staff https://www.bumc.bu.edu/parkinsonsdisease/faculty/

Massachusetts General Hospital: Parkinson’s Disease and Movement Disorders Center.

• Albert Hung, MD, PhD: Director of the Parkinson's Disease Center of Excellence.

https://www.massgeneral.org/neurology/treatments-and-services/parkinsonsdisease-and-movement-disorders-clinic

• Anne-Marie Wills, MD: (One member writes, “I am a patient of Dr. Anne-Marie Wills. I highly recommend her.”)

• Alice Flaherty, MD: (One members write: “We find her to be friendly, extremely knowledgeable. She has lots of ideas about what to try for different medications. She is extremely resourceful.”) https://www.massgeneral.org/doctors/17016/alice-flaherty

Other MGH Movement Disorders Specialists and their care team are found at https://www.massgeneral.org/neurology/treatments-and-services/parkinsons-disease-andmovement-disorders-clinic

Beth Israel Deaconess Medical Center - Parkinson’s Disease and Movement

Disorders Center

• David K. Simon, MD, PhD: Chief of the Division of Movement Disorders and Director of the Parkinson's Foundation Center of Excellence at BIDMC. He is also involved in clinical studies and laboratory research for neuro-protective agents in Parkinson's disease. https://www.bidmc.org/centers-and-departments/neurology/programs-andservices/parkinsons-disease-and-movement-disorders-center

• Link to other BI movement disorders specialists and their team: https://www.bidmc.org/centers-and departments/neurology/programs-and-services/parkinsons-disease-and-movement-disorders-center/meet-our-team

Neuro-gastroenterologists:

• Mayra J.Sanchez De La Cruz MD, Old Saybrook, CT. https://hartfordhealthcare.org/find-adoctor/physician-detail?id=003j000000GD0rfAAD

• Braden Kuo, MD, Mass General Brigham: Wesbite: https://doctors.massgeneralbrigham.org/provider/braden-kuo/255223

• Judy W. Nee, MD, https://findadoc.bidmc.org/Details/1838 At Beth Israel in Boston.

Neuro-ophthamologists:

• Editha Johnson, DO. Hartford. https://hartfordhealthcare.org/find-a-doctor/physician-detailid=0030a00002QSbavAAD

• Danielle Rudich, MD. Waterbury, CT. https://theeyecaregroup.com/our-doctors/danielle-srudich-md/

• Charles H. Rhreeman, MD. Suite 200, 2200 Burdett Ave.,Troy NY

Website: https://saratogaophthalmology.com/our-physicians/charles-h-rheeman-md/

Phone: 518-580-0553. (Main office is in Saratoga.)

- Note: This website highlights PD-related eye issues that a neuro-ophthalmologist may address: https://www.apdaparkinson.org/what-is-parkinsons/symptoms/eye-vision-issues/

Driving concerns may arise when spatial deficits affect your ability to make left turns, to park, or to go through construction areas safely.

Other Needed Specialists:

• Urologists: Parkinson's can affect the nerves controlling the bladder, leading to symptoms like overactive bladder, difficulty emptying the bladder, or urinary retention.

• Cardiologists: A pacemaker for bradycardia caused by PD may be needed. Routine cardiologic care makes sense for patients with PD. A cardiologist can help manage Neurogenic Orthostatic Hypotension (nOH) and ensure that the heart rhythm is normal. He or she can also screen for additional cardiologic problems that may be linked to PD.

Neuro-psychologists:

• Marshall Silverstein, Ph.D, Neuropsychologist (413-551-9870) in Pittsfield. He offers psychological and cognitive testing. He is very familiar with Parkinson’s. He accepts Medicare and a variety of insurances. More information is available here. https://www.psychologytoday.com/us/therapists/marshall-silverstein-pittsfield-ma/199636

• Sarah C. Marshall, PhD, Berkshire Memory Services, 197 South St.,Doctor’s Park, Building A, Pittsfield, MA 01201 (413) 445-9944

Email: berkshirememoryservices@verizon.net

Psychotherapists: (For persons with PD as well as for Care Partners)

• Cynthia Finn Potel, Psychotherapist (413-623-9447) sees clients in person in Lee and online. She accepts many insurances including Medicare. Individual sessions cost $175. You can read more about her here:

https://www.psychologytoday.com/us/therapists/cynthia-finn-potel-lee-ma/337700

• Susan Winston, Marriage and Family Therapist, (818-618-0775) sees clients online and in-person at her office near Belcher Square in Great Barrington. Accepts several insurances; Medicare is not listed. Session is $250 with sliding scale. She writes, I would like to help and have a lot of experience [with Parkinson’s]. Right now my practice is full but things are always changing so yes, please put me on your list. And thank you for contacting me.

Website: www.susanwinstonmft.com.

https://www.psychologytoday.com/us/therapists/susan-b-winston-great-barringtonma/79331

• Nancy Richards Marcus, Psychotherapist, (413-266-5130) sees clients face-to-face and online in Great Barrington. She accepts several insurances. Individual sessions may be paid for at $125 per session. You can find more information about her, as well as her phone number by clicking on this link:

https://www.psychologytoday.com/us/therapists/nancy-richards-marcus-great-barrington-ma/1165091

• Rachel Duvall, Psychotherapist (413-722-5557) clients face-to-face and online in Great Barrington. Individual sessions may be paid for at $220 per session (a sliding scale is available). You can find more information about her, as well as her phone number by clicking on these links:

Website: https://rachelduvallpsychotherapy.com/

https://www.psychologytoday.com/us/therapists/rachel-r-duvall-great-barrington-ma/770716

• Brett Thatcher, Psychotherapist (bthatcher@gouldfarm.org) sees clients on-line. His fee is $150 per session. Many of you have met him when he presented at our Support Group Meeting. He is a psychotherapist at Gould Farm. You can find out more information about him here:

https://www.psychologytoday.com/us/therapists/brett-thatcher-northampton-ma/1166355

Physical Therapists:

• Tricia Wyatt PT tricia@mobilivespt.com, (413) 822-9456. Mobile outpatient Physical Therapy in central/southern Berkshires. She is a PWR!Moves® Certified Therapist, PWR!Moves® Certified Exercise Instructor, and LSVT Big R Certified Therapist. She accepts Medicare B and BCBS.. https://mobilivespt.com/

• Gateway Physical Therapy in Lee. https://gatewayphysicaltherapy.com/

• Fairview Outpatient Rehabilitation: Great Barrington. One member writes, “They have been excellent as well as resourceful. I have worked with their physical therapist, an occupational therapist and soon a Speech therapist.” Phone: 413-854-9740.

• (Additional resource for accessing physical therapy and exercise) APDA National Resource Center for Rehabilitation https://www.apdaparkinson.org/community/massachusetts/resources-support-ma/additional-resources/apda-national-resourcecenter-rehabilitation/

Occupational Therapists:

• Christina Befanis, OTD, OTR/L, LSVT Big; 860-824-2660, cBefanis@geercares.org

Canaan, CT.

Speech Therapists:

• The Parkinson Voice Project - https://parkinsonvoiceproject.org A resource for online Speech Therapy.

• PARKINSON COMMUNITY WELLNESS - Soules Sports & Fitness in Lee. The next 6 week session starts August 26; Tuesdays and Fridays 12-1pm. The fee is $10 per class. A letter from a physician for medical clearance required. Website: https://www.soulesfitness.com/

• Justin Soules, Soules Sports and Fitness, https://www.soulesfitness.com/ is a certified trainer for people with PD. He offers individual sessions at his gym in Lee. The sessions emphasize balance, coordination, resistance training, cardiovascular fitness. Several members of our group have received individual training sessions from Justin.

• Chair Yoga with Connie Wilson, a certified yoga teacher of group and individual classes since 2002. Connie teaches local classes in Monterey and Otis. Currently at the Monterey Community Center Tuesday 10 - 11 am. https://www.ccmonterey.org/

• LSVT Big and Loud (with some Tai Chi) - Great Barrington Senior Center. Instructor is Cheryl Reynolds. Phone 413-854-9740 https://www.greatbarringtonseniors.org/

Class meets Mon and Wed from 1 to 2. $5/class.

• LSVT Big at Access Physical Therapy, 90 Pittsfield Rd., Lenox Ma. 413-637-2810 -

https://accessphysicaltherapywellness.com/location/lenox-ma/

Note: LSVT stands for Lee Silverman Voice Therapy. There are 2 types:

• LSVT Loud is a speech therapy program to address vocal loudness, speech intelligibility, and facial expression.

• LSVT Big is a physical and occupational therapy program to improve movement, balance, and overall mobility. PWR! stands for Parkinson Wellness Recovery.

• PWR! Moves therapy is PD specialized physical and occupational therapy that implements comprehensive PD-specific functional skill training that is research informed, with the goal to improve and put off functional decline.

Licensed Massage Therapists:

• Mend in Great Barrington: https://www.mendsustainablespa.com/ourteams Lis Stucker loves massages from Erika Stubbs and Virgil Stucker loves massages from Ned Torrico.

• Ben Corbett, (413) 377-8033, 140 West Ave Great Barrington. Suite B (recommended by Lin Saberski)

• Stephanie Otter in Monterey. https://www.massagebook.com/Monterey~Massage~stephanie-otter?src=external. She offers SRT: Soft-stretch Release Techniques, a gentle, non-aggressive approach to neuromyofascial release targeting the nervous system for a relaxed state, which can help people with PD manage muscle stiffness, improve mobility, and reduce pain. (Disclosure: Stephanie is Lis and Virgil’s daughter.)

Trager Practioners:

• Ellen Russo, 413-541-9619. receivepeace@gmail.comellenrusso.com Great Barrington. Here is the trager.com website.

• Meg Agnew, 518-653-3058, tragerfreedom@gmail.comhttps://www.megagnew.com/

Great Barrington. Acupuncturists

• Matthew Berg, acupuncturist in Great Barrington: https://mbergacupuncture.com/

Matt understands PD; Lis Stucker has had several sessions with him.

Functional Nutritionists:

• Eileen Bote presented to our group about how improved nutrition can be helpful for PwP as well as for Care Partners. https://www.eileenbote.com/

These are within 50 miles of Monterey and are rated on the medicare.gov website as being rated overall as a 3 out of 5 by Medicare.

• Berkshire Place, 290 South Street, Pittsfield, MA 01201, phone: 413-445-4056. https://berkshireplace.com/

• Mount Carmel Care Center, 320 Pittsfield Road, Lenox, MA 01240, 413-637-2660. https://mountcarmelcare.org/resources-for-senior-care-lenox-ma They also offer palliative care.

• Mt. Greylock Extended Care Facility, 1000 North Street, Pittsfield, MA, 413-499-7186. https://integritushealthcare.org/our-locations/mt-greylock/ They also offer palliative and hospice care.

• Berkshire Rehabilitation and Skilled Care Center, 7 Sandisfield Road, Box 216, Sandisfield, MA 01255, 413-258-4731. https://berkshirerehabilitation.com/ They also offer hospice care.

• Geer Nursing and Rehabilitation, 99 South Canaan Road, Canaan, CT 06018, 860-824-5137. https://www.geercares.org/skilled-nursing-home-litchfield-ct/ They also offer hospice care.

• Pine Haven Nursing and Rehabilitation Center, NY Route 217, Philmont, NY 12565, 518-672-4021. https://pinehavencarecenter.com/skilled-nursing/ They also offer hospice care.

• Kimball Farms Nursing Care Center, 40 Sunset Avenue, Lenox, MA 01240, 413-637-5011. https://integritushealthcare.org/our-locations/kimball-farms-nursingcare-center/ They also offer hospice and palliative care.

• Craneville Rehabilitation and Skilled Care Center, 265 Main Street, Dalton, MA 01226, 413-684-3212. https://www.banecare.com/craneville-place-skilled-nursing-homerehabilitation/

• Sharon Center for Health and Rehabilitation, 27 HospitalHill Road, Sharon, CT 06069, 860-364-1002 Hospice and Palliative Care

• Hospicecare IN the Berkshires, 877 South Street Suite 1W, Pittsfield, MA 01201. 413-443-2994. https://hcib.org/ It is part of Integritus Healthcare, a nonprofit.

Elder Law Attorneys

• Paula Almgren, Estate Planning Attorney, One West Street, Lenox, Massachusetts 01240, 413-637-5075. https://berkshirelawgroup.com/ Specializes in elder law, long-term care and life care. Paula is assisted by drafting attorney, Brian Murphy and care manager, Kulli Bloom, RN, MSN. New book by Paula Almgren; “Eldercare: The Rules” on Amazon.

• Susan Smith, Estate Planning Attorney, 38 Mahaiwe St., Great Barrington, MA 01230. Phone: 413-528-4300 and 413-229-7080 ssmithlaw@barringtonlawoffice.com. Specializes in elder law, retirement planning, Medicaid, guardianship, and estate planning.

• Benjamin Smith, Smith & Gerrard Pittsfield 413.442.2731 www.bensmithlegal.com  

• Richard Drennan Drennan Law Office Pittsfield 413.445.5621

https://www.drennanlawoffices.com/estate-lawyer-pittsfield-massachusetts   

• Pamela R. Green, Smith Green & Gold Pittsfield 413.443.1700 www.smithgreen.com  

• James Sisto, Berkshire Elder Law Center, North Adams, 413.664.7700, https://www.mhcattorneys.com/james-sisto-esq-of-counsel    

• James Loughman, Donovan O’Connor & Dodig, North Adams 413.663.3200 https://www.docatty.com/attorney/james-r-loughman/   

• Lynn Morelli, Law Office of Lynn Morelli, Pittsfield 413.822.9360 www.lynnmorelli.com  

Financial Support

• Home Modification Program  https://cedac.org/hmlp/ - access to a no-interest loan from the Commonwealth of Mass for up to $50,000 to modify your home to make physical movement easier. Also, this can help you build accommodation for a care partner. This money needs to be returned when your home is sold. 

• Frail elder waiver https://www.mass.gov/frail-elder-waiver-few - getting this waiver helps you to get state-subsidized home health care.

• Independent Advice about Medical Insurance: The SHINE advisory program of Elder Services of Berkshire County. https://www.esbci.org/services/shine-program/ (Virgil and Lis Stucker report that SHINE advice saved them $2000 in one year.)

• Parkinson Wellness Fund - https://parkinsonswellnessfund.org They have a model of grant making towards proactive wellness and relief. Grants are made directly to people with Parkinson’s. The average grant is $180-$360.

• APDA provides ‘hardship grants’: https://form.jotform.com/APDAHome/mafinancialhardship 

Care Management and General Support 

• Elder Services of Berkshire County: https://www.esbci.org/ - Elder Services is quasi-public, nonprofit entity that annually receives over $25M from Commonwealth and Federal tax dollars (plus donations) to provide an array of services to enhance the lives of elders in Berkshire County. It offers access to advice, care management services, referral to (and, for eligible clients, payment for) home healthcare aides, home delivered meals 5 days a week, care partner respite and other supports. Call 413-499-0524 to learn more. (Disclosure: Virgil Stucker is on their Board of Directors.)

Care Partner Support Groups 

• Central County, Elder Services of Berkshire County, Inc., 73 South Church Street,Pittsfield (413) 499-0524 2nd and 4th Tuesday of the month, 10-11:30am

• South County, Claire Teague Senior Center, 909 Main StreetGreat Barrington (413) 499-0524 1st and 3rd Wednesday, 1-2:30pm

• Councils on Aging in Berkshire County: Each town has a COA and here is the contact list:  https://www.esbci.org/coa-contact-list/ Note: Our Parkinson’s Support Group is a program of the Monterey Council on Aging; Lin Saberski, Chair. lbscpw@yahoo.com; 347-839-0745. Virgil Stucker is the Coordinator of the Support Group; VirgilStucker@icloud.com; 828-388-4673.

• Veterans Administration: The South County representative is Thomas Beasley 413-528-1580.

Transportation: 

• Tri-Town Connector; (413) 591-3826; is a local transit service providing low-cost door-to-door rides in the South County community. Rides can be booked by phone or with the TripShot rideshare smartphone app. Rides are $2 or $4, depending on pick-up and drop-off destination. Download TripShot Seniors  (60+) may purchase a discounted book of tickets for 10 one-way rides, at the Claire Teague Senior Center transportation office, in Great Barrington, weekdays 8AM to 4PM. Ticket books may also be purchased on the vans and at other local Senior Centers. Prices for these discounted tickets are: $15.00 for travel within one town (a 25% discount) and $25.00 for multi-town trips (a 38% discount). Rides are also available (for seniors only) to New Marlborough, from 8:00AM to 4:00PM, on weekdays only ($4.00 each way), and to medical appointments in Pittsfield for $15.00 (round trip) but only between 8:00AM and 4:00PM, on Mondays and Wednesdays.

• Cabulance in Pittsfield offers full-service medical and non-medical transport services to assist clients that are in wheelchairs, walkers or have any type of mobility aid. Phone: 4134473800 https://crtcabulance.com/transportation-services

• Handicapped Access in Massachusetts: In order to obtain disability plates, a placard or a disability veteran plate, you must be a Massachusetts resident. A Massachusetts registered and licensed physician, chiropractor, registered nurse, physician's assistant, osteopath, optometrist (for legally blindness only) or podiatrist must certify that you meet one of the following conditions: Cannot walk 200 feet without stopping to rest or cannot walk without the assistance of another person, prosthetic aid, or other assistive device. Physician offices know how to do this for you. Call 857-368-8020 for information.